From July 13th 2016 to July 13th 2019: a full recovery and being in remission!

From July 13th 2016 to July 13th 2019: a full recovery and being in remission!

July 13th 2016: leaving room 426 after “only” five weeks in the hospital and three weeks after the graft!

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June-July 2017: the first anniversary (in Noirmoutier island)

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July 2018: end of ciclosporine/photopheresis. Being in remission!

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July 2019: Belle-Ile island…

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Now, I think that I can say that I made it to the moon and back!

Thanks to the fantastic team at Saint antoine, and in particular my kind graft doctor who was and is still available to answer all my stupid questions, my anonymous graft donor who gave me my second life, my beautiful family and my friends: I love you!

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June 24th 2016- June 24th 2019

June 24th 2016- June 24th 2019

Today, June 24th 2019 is a very important day: the 3rd anniversary of the hematopoietic stem cells graft! I would like to share a few photos taken before, during and after the graft. If I am with you today, it is because I had the chance to meet the fantastic team of the dept of Hematology at Saint Antoine Hospital and in particular my kind graft doctor . They are now and forever a part of my big family. I love you all! Of course my anonymous donor was the key for this positive outcome: without her gift,no life was possible. There is little chance that she will read this message, but who knows, life is full of surprises …and of love. My family has been the key supporter before, during, and after this experience. Together, we have made this long trip from th earth to the moon and back. I love you so much! I do not forget my friends, old and new, who were always confident that “I could make it”: thank you!

Each morning, when I wake up, my first thoughs are for you!

With love :-)!Added today, june 25th 2019: this morning I met with me kind graft doctor. She gave me the results of the blood aanalysis made yesterday: all good!She even told me that it was of no need to have the anti-viral drug: 100% drug-free, after “just” 3 years! Youpi! Thank you my wonderful graft doctor and the team at saint Antoine! Thank you my anonymous donor (today I gave a letter for her to my doctor)! Thank you my family and my friends! I love you all so much!

Boulder, Fall 2015: a “healthy guy”!

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Early 2016, Saint Antoine hospital: the fainting guy (after my first blood transfusion, and falling to the ground)

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Preparing to enter the hospital, June 2016

Room 426, Saint Antoine hospital, mid-June 2016. A room with a vue!

The “D” day: June 24th 2016: the gift of life from my anonymous donor

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July 13th 2016: living Saint Antoine, heading back home!

October 2016: first dinner outside!

Spring 2017: painting and enjoying life!

June 2017: Noirmoutier island, being able to bicke (did you notice the color of the hair…and the curls!)

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Fall 2017: my nice graft doctor gave me the green light to go abroad! Toronto!

Nanjing China!

Spring 2018: somewhere in France

An artist in action!

Fall 2018: Canadian Rockies

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End of 2018-Beginning of 2019

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Spring 2019:

 

 

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Nanjing-Yangzhou-China

Nanjing-Yangzhou-China

Greetings from Nanjing-China!

This time no health-related reports! Just fun! Enjoying my new visit to Southeast University in Nanjing.

Here are some photos taken around the campus .

I visited several beautiful monuments and garden in and around Nanjing,  often related to buddhism.

 

On sunday, I visited Yangzhou, which is seated on the bank of the Yangtze river, near the “Grand Canal” flowing from Beijing to Suzhou.Yangzhou is famous for its gardens, its Slender West Lake,…Not to forget the specialities cooked there! Dumpling with various fillings, fried rice, salty goose…Here are some photos.

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Today, friday June 7th, is my last day in Nanjing. Tomorrow, I will leave, back to France. But today is “Dragon Boat Festival”, a holiday! To know more about this festival:

https://www.travelchinaguide.com/essential/holidays/dragon-boat.htm

This morning, for breakfast, I had “zongzi”, made of sticky rice: delicious!

 

If I can travel “freely” now, it is because of the outstanding job made by my wonderful graft doctor and the team in Saint Antoine hospital. I don’t forget my stem cells donor (she is within me all the time ;-)!), and my beautiful family and friends. Each morning, when I wake up, my first thoughts are for you! I love you all!

 

A stained glass project

A stained glass project

Today, no health related news!

I would like to share with you an activity which has been more and more important for me since the spring of 2017: stained glass projects. Up to now, I had finished 5 projects, from  the first one I did in the spring of 2017 when I was not strong enough to cut the pieces of glass, to the last one finished a few months ago. Today, I will present the last one, which is “an italian landscape”, sort of ;-)!

It all started with a photo taken in a church of a stained glass window….

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The first step, after drawing the cartoon, was to choose the colors of the glass to be used…

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Then came the key step: cuting the pieces in the most accurate fashion possible (taking in account that I am a beginner “artist”!)…

 

 

With all the pieces cut, now came the building of the stained glass.

 

The stained glass I was making was of the “Tiffany type” (https://en.wikipedia.org/wiki/Tiffany_glass).A key step is to wrap around each piece of glass a small ribbon of copper…

 

The last step consist in gluing together the glass pieces by welding using tin solder… et voilà!

 

I hope you  like it!

All this work has been done at “Irisations ” (https://www.irisations.com/Irisations-index-vitrail-Paris-en).

All those “artistic activities” are based on “my good health”! I would like to thank again all the people at the Saint Antoine hospital and in particular my kind graft doctor, my anonymous stem cells donor, my family and my friends: I love you all! Each morning, when I wake up, my first thoughts are for you :-)!

The renewed pleasure to be able to travel

The renewed pleasure to be able to travel

I have been silent for quite a long time… but it is not for health related problems! It is just that I was busy traveling: Canada and the US!

We went to Toronto to visit our daughter and her husband. We left France in the spring and arrived in Canada in the winter :-)! Freezing temperatures, snow, rain, wind!

Then, we visited our friends in Boulder-Colorado, a place I visited many times when I was allowed to work in a chemistry lab, to make it short, during my first life :-)!

We climbed the high mountains (3000 m) in deep snow and low temperatures. But because of my new high quality red blood cells I had no problem to perform this exploit! A few places we visited: mud lake (Nederland-Colorado), Brainard lake (Ward-Colorado), Bear Lake, Nymph Lake and Dream Lake (all in the Rocky Mountain National Park)…

We shared lunchs/dinners with our friends in Boulder, and I was able to show them my new hobby: making real “brioches”!

After, we went back to Toronto for an another week, then moved back to France to find again the Spring :-)!

Here are some photos taken during this trip…

First Toronto:

 

Colorado:

My famous brioches:

Spring in our garden in Bures:

If I can travel freely those days, it is because I had the enormous chance to meet fantastic people at the Saint Antoine hospital and in particular my wonderful graft doctor, my donor who gave me the chance to live my second life, and my family and friends who supported me so well… I love you all :-)!

 

 

Dynamic phototherapy to remove a carcinoma

Dynamic phototherapy to remove a carcinoma

Last wednesday, I had an apointment at the Tenon hospital-department of dermatology to remove another carcinoma, the one located at the back of the skull.This time no surgery (well at least for this time!). The principe of this technique is simple: first a cream containing a photosensitizer is applied on the carcinoma. I had to wait 3 to 4 hours before the second step (the photosensitizer is supposed to enter the skin during this time). Then a strong light is focused on the carcinoma during several minutes (a little painful, it is like a local burn). Pretty simple no? Results will be checked in 3 months.

A much better description of the technique can be found at:

https://www.cancer.gov/about-cancer/treatment/types/surgery/photodynamic-fact-sheet

The dermatologist looked also at my body to discover if a new carcinoma had appeared, and also to check for some cGVH in the mouth and on the sexe: according to him nothing (however when I will meet with my kind graft doctor next june, I will ask her again about the GVH: she is a specialist!).

Beside, last week, as requested by my graft doctor, I did a full blood analysis: according to my kind doctor, the analysis is perfect!

The only difficult point for me is the fact that I am always tired, even when I do just a little gardening. It is disturbing and it is not going away…

But the spring is there, with some sun and a lot of flowers in our garden…

Lunch at the hospital…

 

 

 

 

 

 

With love!

 

 

 

March 8th: Women’s day…

March 8th: Women’s day…

Today is Women’s day! For me, as a chimera half-man half-woman, it will be only “half a women’s day” ah ah! But I will celebrate anyway!

Friday afternoon is the day when I am working on stained glass: I will ask my teacher to pay only half the fee :-)!

I am almost 33 months after the stem cells graft. My blood analysis is kind of perfect. I might have still a little bit of GVHc, but it keeps coming and going, mainly in the mouth and on the sexe… In two weeks, I will meet a dermatologist for another turn of phototherapy (a carcinoma to remove). I will ask her what she thinks… Anyway no big deal!

To celebrate this special day, here is a song by J. Ferrat:

based on a poem by Aragon:

http://muze15.canalblog.com/archives/2011/07/17/21598991.html

I will not leave this post without thanking the fantastic team at Saint Antoine hospital and in particular my kind graft doctor , my anonymous donor, my wonderful family and my friends: I love you all!

Take care and enjoy life!